What's happenin' Abby Lovers,
It's daddy here. Kelly extends her apologies on the delay of this update and the pics that were promised. CHOC had given her a laptop to use but they needed it back so she was left without any means of internet access.
Monday and Tuesday of this week were pretty difficult. Abby definitely hit that "wall" that the therapists said she would hit. She was just more defiant and not willing to sit in her chair and eat anything. Abby was also drinking a lot less and she started to to spit her food out again. The therapists said they weren't too worried and that this behavior was mostly just a control thing. What's this? Abby having a need to be in control? Naaaahhhh!!! Not OUR Abby! :-) Either way, Kelly and I were still concerned simply because it's Abby. Abby just doesn't do things "normally." So if kids in this program "normally" do this or "normally" do that....we don't plan on resting easy until Abby shows us that she is in the clear.
Wednesday was definitely this day. Well...perhaps we shouldn't go so far as to say she's in the clear but Kelly said it does look like she past the "hitting the wall" point and on the upswing. Wednesday was the day we switched Abby's milk products and she likes these much more. They are from a different manufacturer and she just really likes the way they taste. I've tasted them...they ARE good! She is also starting to do better with sitting down while she eats. The first 20 to 30 minutes are pretty good now and this morning she even sat calmly in her chair for a full 40 minutes!
This weekend Abby gets 2 "get out of jail free" cards! One for Saturday and one for Sunday. The therapists want us to take her to a restaurant where she can eat from a menu and see how she does in that atmosphere. I'm so anxious to see how she does! Kelly is anxious too, but more than anything, she is dying to get out of there! She literally hasn't left the CHOC campus in over a week. Her ADHD is kicking in and the already small hospital room (where they spend a lot of time) is getting smaller and smaller by the day. I truly don't know how she's doing it. She is MY hero.
Keep the prayers coming both for Abby's continued success and for Kelly's sanity. They are officially on the back side of this journey but still have 8 more days after today.
It's daddy here. Kelly extends her apologies on the delay of this update and the pics that were promised. CHOC had given her a laptop to use but they needed it back so she was left without any means of internet access.
Monday and Tuesday of this week were pretty difficult. Abby definitely hit that "wall" that the therapists said she would hit. She was just more defiant and not willing to sit in her chair and eat anything. Abby was also drinking a lot less and she started to to spit her food out again. The therapists said they weren't too worried and that this behavior was mostly just a control thing. What's this? Abby having a need to be in control? Naaaahhhh!!! Not OUR Abby! :-) Either way, Kelly and I were still concerned simply because it's Abby. Abby just doesn't do things "normally." So if kids in this program "normally" do this or "normally" do that....we don't plan on resting easy until Abby shows us that she is in the clear.
Wednesday was definitely this day. Well...perhaps we shouldn't go so far as to say she's in the clear but Kelly said it does look like she past the "hitting the wall" point and on the upswing. Wednesday was the day we switched Abby's milk products and she likes these much more. They are from a different manufacturer and she just really likes the way they taste. I've tasted them...they ARE good! She is also starting to do better with sitting down while she eats. The first 20 to 30 minutes are pretty good now and this morning she even sat calmly in her chair for a full 40 minutes!
This weekend Abby gets 2 "get out of jail free" cards! One for Saturday and one for Sunday. The therapists want us to take her to a restaurant where she can eat from a menu and see how she does in that atmosphere. I'm so anxious to see how she does! Kelly is anxious too, but more than anything, she is dying to get out of there! She literally hasn't left the CHOC campus in over a week. Her ADHD is kicking in and the already small hospital room (where they spend a lot of time) is getting smaller and smaller by the day. I truly don't know how she's doing it. She is MY hero.
Keep the prayers coming both for Abby's continued success and for Kelly's sanity. They are officially on the back side of this journey but still have 8 more days after today.
Thanks everyone. We love you!
Daddy
If Abby does well with a feeding, the therapists let her play! This one is her favorite. She goes down a slide into a big pool of balls!
Here she is in action!
Is she trying to tell us something here? :-)
And since many of you that are checking this blog don't live close by, here are some pics of the boys!
Eddie LOVES Jack! And Jack loves him back. I love watching them play together.
And since many of you that are checking this blog don't live close by, here are some pics of the boys!
Eddie LOVES Jack! And Jack loves him back. I love watching them play together.
Here we are at Eddie's Birthday Bash at the Beach!
Some more beach pics....
Pics from Abby's End of the Year Party at School
Some more beach pics....
Pics from Abby's End of the Year Party at School
1 comments:
Sounds like things are going slowly but surely! Happy that you guys are so positive. Your positive energy makes me happy! Miss seeing the Gaya Family!
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