Written Friday Morning

Finally!
Abby was kind to us last night so I actually have a bit of energy to type a few words. Well let’s see. How was the first full week of having our Abby home? It was fantastic! Sleepless? Yep. Especially for Kelly who usually let’s me sleep if Abby is fussing all night.

So here are some technical updates. Abby has been very fussy lately. We had our first appointment with our pediatrician and mentioned Abby’s fussiness to her. She confirmed Kelly’s concerns about the G Tube area being a bit irritated and maybe a little infected. She isn’t concerned that the G Tube itself is infected inside Abby, so we’re just cleaning around the skin with some peroxide. Abby’s little bum is also quite sore and red. Lately she’s been going #2 just about every time we change her diaper, which is good, but it’s not helping the rash. Our pediatrician got her some ointment for that too. And finally, Abby has pretty bad reflux. Her tummy is VERY acidic and she will all of a sudden start screaming, hunch over and ball until the reflux passes. It’s horrible because now my little angel cries REAL tears. Bless her heart. Anyway, we have some medicine for that as well and it’s working. All of the medicines seem to be kicking in which is why I think we got a decent nights rest last night. When Abby gets really hungry, she’ll really get after the pacifier and the other day, Kelly was holding her when the pacifier dropped. As Kelly went to get it, her cheek was next to Abby’s mouth so Abby got after mom’s cheek and started sucking on it and licking it! Priceless. We call it any Abby Kiss. It’s so adorable.

Speaking of hungry, Abby is starting to turn a small corner in this department. Last Tuesday, she took 3 full bottles in a row! She’s NEVER done that before. On Wednesday, she took 2 and even one for daddy. Yesterday she took one but was zonked all day. So zonked that Kelly got concerned and called our pediatrician who said not to worry. We know babies sleep and grow, but we’re on hyper alert with Abby. Especially since a lethargic Abby on top of a fever can mean that her shunt is clogged. If that happens, which we’re told there’s a very likely possibility that it will happen, it’s immediate surgery time to get it unclogged. Obviously we’ll be on the look out for this one at all times. Anyway, we’re super excited that she’s doing so much better with her feeding. Our hope is that all these ointments and medicines will help Abby with her fussiness. It has been an amazing week and like every new parent, we’re starting to get our routine down….as much as possible! Sometimes Abby likes to come in and make up her own routine and throw us off.

I’ve provided some more pics to confirm that as of today, she is still the cutest little nugget on the face of the earth. Abby is starting to make cute faces and she even breaks out a smile every once in a while. And I finally got it in a picture!

We love you. Prayers for Abby’s fussiness and continued success with eating please.

PS – That’s right. The other picture is of the FREEZER I had to buy for Kelly’s breast milk. Abby will drinking milk for days! We’ve had a ton of hurdles, heartaches and issues on this road, but clearly, Kelly’s milk coming in wasn’t one of them!