Sunday's Abby update

What a night! Abby wasn't doing very well last night. Her spells continued and even became more frequent. Kelly and I finally pulled ourselves away from her bedside around 11 PM. We said a prayer with her before we left and I was actually at peace for the moment. Then the 3AM phone call came. It was the hospital; oh man, did that scare us! The call was just to tell us that they took Abby off of the CPAP and put her back on the ventilator. We were relieved to hear that this stopped the spells almost immediately. However, we are a bit concerned that she wasn't able to maintain her breathing on the CPAP . We were told from the begining that there would be a very good chance that Abby would have to go back on the ventilator. The fact that Abby was able to stay on the CPAP for as long as she did (about 4 days) is a good thing.

The menu for today is: More drugs to get her tummy moving stuff around so we can start feeding her mommy's milk again, and a head ultrasound to see how her hemmorhage has been doing. We still haven't pulled any fluid from her head since Tuesday, and while her head is a bit bigger today, it hasn't grown nearly as fast as it has in the past and the head ultrasound will hopefully shed some light on this subject. Either way, the fact that her head isn't increasing as fast as it has in the past is a good thing. I do think they will tap her today just to be safe.

As I sit and type this, Abby is right next to me and doing well. She hasn't had any spells today and is at the lowest oxygen output setting on the ventilator (21% the same that you and I breathe). Her heart rate is good, her blood gas levels came back good and her SATS are good. If you want, Google the term SATS and see what you get. I'm too tired to explain. Just know it's a good thing. Since she's doing so well right now, I can't really call this a step back. We'll call it a step sideways, and let me tell ya, after yesterday and that phone call that scared the junk out of us, I will take sideways steps all day long.

Thanks yet again for all your love and support. It is working as Abby continues to fight. From what I understand, our little Abby has already touched many hearts. It seems she has more friends than I think any of us will ever have! That's wonderful. Abby and her sisters have certainly made us all remember what is really important in this life haven't they? Please continue to share her story with whomever you like. The more prayers and positive energy thrown towards our little Abby the better. Hug your families extra tight and tell them Abby says hello and thank you. Of course, her mommy and daddy love you all too!